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Dear Friends,

It is with a heavy heart that I am writing to let you know that my adored grandson Max Randell passed away on April 18 2020 at 3:02 a.m. We welcome you to offer a prayer for our Maxie in your faith.

Canavan Research Illinois will continue to fight for the children as a tribute to Max’s life. We have establlished "The Max Randell Memorial Fund for the Cure" to fund pioneering research in Max's name.

Maxie was a medical pioneer when he became the youngest person in the world at 11 months of age to have gene therapy for a neurodegenerative disease.  He was warrior in the battle against Canavan disease and he became the face of the disease. Max represented all the children battling Canavan and the need to support medical research in the media worldwide. He became an inspiration to many with his winning smile and love of life.

Our October benefit has been cancelled by the hotel due to the Covid situation thus we will not be hosting our annual Canavan Charity Ball this year. If you would like to make a donation to honor the memory of our beloved Maxie a secure online donation may be made below. Checks may be mailed to the charity address. Please make a note that your donation is in honor of Max’s Miracle. 

Sincerely,

Peggy Shapiro-Nyeholt 
         
Vice President