News Articles - Archives

Canavan Gene Therapy offers Max Randell & family hope

Philadelphia Inquirer - July 6, 2001

At Jefferson, experiments into a fatal disorder may have broad implications. Ilyce and Michael Randell trade off holding and comforting their only child, Max, 3½, as they sit on a bed at Thomas Jefferson University Hospital. They carefully support his shaved head, freshly scarred from a highly experimental gene-therapy treatment he had two days earlier - a treatment they hope will slow the relentless progression of his fatal disorder. Read More

Max Randell - New genes provide hope to Palatine boy

Daily Herald - July 5, 2001

Only days after undergoing a groundbreaking experimental gene transplant, 3½ year-old Max Randell was cradled in his mother's arms on the floor of their Palatine condo, listening to her croon a little song. Read More

Max Randell - Battle Over Gene Therapy Puts Hopes on Hold

Washington Post - March 7, 2000

Like most 2-year-olds, Max Randell is a bundle of exuberance, gaining new mastery over the world with every passing day. But unlike most children his age, Max has just about reached the prime of his life. Read More

Patient Petition Supporting Stem Cell Funding

Scientific Release - May 14, 2001

Patient Petition Supporting Stem Cell Funding Presented to HHS Policy Czar signed by 13,000 chronically ill patients and 80 Nobel winners supporting stem cell therapy was presented by Ilyce Randell, a Canavan's Disease advocate. Read More

A Good Reason To Hope

August 19, 1998

Expensive Treatment Might Prolong Baby's Life. Read More

More News

Comptroller Daniel Hynes's letter of appreciation

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Letter of support from IL Senator Richard (Dick) Durbin

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Ilyce Randell's testimony before the NIL, HHS, NICHHD

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Ilyce's presentation before the NIH

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