Ilyce and Max Randell have represented our battle to save the children battling Canavan disease on national shows including: Dateline NBC, Leeza, Montel, NBC, FOX, ABC, WGN CBS News and Live with Regis and Kelly. We have won the 'Make A Difference Day' Award as well as the National Diet Rite Cola Zero Boundaries Award for our dedication to the children battling Canavan disease.
Our mission to cure Canavan disease has also been featured in the Philadelphia Inquirer, Washington Post, the Chicago Tribune, Pioneer Press, CJN, Daily Herald, JUF, as well as newspapers worldwide.
Now 19, Max continues to make appearances helping to raise awareness of Canavan disease and the desperate need for funding to support life saving medical research.
October is 'Canavan Disease Awareness Month'
Ilyce Randell also writes and contributes stories for
publication to The Mighty.
As the parent of an affected child she uses her experience to help other families affected by Canavan disease.
The 19th Annual Canavan Charity Ball will
be held on Saturday, October 21st, 2017 at the
Chicago Marriot in Schaumburg, Illinois.
Invitations will be mailed out in August 2017
Thank you all so much for your continued support. We began this work nineteen years ago and are eternally grateful for everyone who has supported our mission to help children and families affected by Canavan disease. What began as one family's desire to save their child has grown into the single largest effort in the world focused solely on helping children born with Canavan disease.
Please see our 2017 Canavan Research Illinois Newsletter and enjoy reading about the wonderful progress that is being made towards a cure for Canavan disease, research updates, photos of our beautiful children, and photos from the 18th Annual Canavan Ball held in honor of Max Randell's 19th Birthday.