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Canavan Research Illinois
To purchase tickets to this fabulous event - featuring dinner, dancing, and our amazing silent auction tables - click here
The 18th Annual Canavan Charity Ball will be held on Saturday October 8, 2016 at the Marriott Schaumburg Hotel. We will be rolling out the red carpet in celebration of Max Randell's 19th Birthday! Funds raised will advance medicine aimed at helping all children and families affected by Canavan disease.
WE NEED YOUR HELP!
We need everyone's help ASAP! Please read and sign this petition. Pfizer needs to know that there is worldwide support and the possibility of profit by using newly acquired technology for Canavan disease. They are going to move forward with this technology using smaller diseases first, so of course we want Canavan to be one of the first clinical trials because it's progressive and the children battling Canavan don't have the luxury of time to wait.
Please read and sign the petition, make a comment, and then share the post and encourage others to do the same. It doesn't cost ANYTHING and we need to keep Canavan disease on the radar at Pfizer. They own the latest technology to develop a cure but are not obligated to move forward quickly, or to move forward at all. This is the first step and the easiest part of patient advocacy so please lend a helping hand. Let Pfizer hear your voice. Please speak for the children who cannot speak for themselves by signing and sharing this petition. This could open up millions of dollars in research to treat and cure Canavan disease.
This is going to help kids like Max and then hopefully millions of other people with related diseases. Please help us keep Canavan disease on Pfizer's radar because one day this same technology might be something you need to save a loved one or even your own child.
On March 6th 1998, we were given the news that no parent ever wants to hear... our son, Max Randell, was diagnosed with Canavan disease.
Our beautiful 4½ month old baby boy was dying of Canavan disease, a
degenerative brain disease for which there was no cure or treatment.
At that point we decided to fight for our dear little Max and all
the other children with Canavan disease.
Ilyce & Michael Randell, co-founders
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For our dedication to these
brave children, we have received the following awards:
proclaimed Canavan Disease Awareness Month
Dedicated to Curing Canavan Disease - Canavan Research Illinois - Home Page